Hello friend… I love seeing your writing… Though of course I wish you didn’t have to write about this topic that you and I know all too well… And I think we’ve touched up on this, but it is so natural to all of a sudden feel an uptick and angst after treatment is done, because the “doer mode“ is over and now you just have to get to the living part of life and that seems less controllable than showing up for chemo and scans and tests etc. (as grueling as that is)… That said, like most things, it gets easier with time, I promise . And reading your experience, and the other people here still makes me so angry at how much the healthcare system is broken… As a physician, I can tell you that I know approximately zero doctors, who think that the patient portal giving patients access to every single one of their test results immediately because of the CARES Act is possibly one of the most egregious things that has happened. Of course you have the right to have your own medical records but to have them immediately after they have been resulted before your doctors or their offices have even had time to see them let alone call you is beyond ridiculous and serves no one… I’m so sorry to all of the patients who this has happened to. Love you and love that you’re on this platform! XO Shieva
I had a very similar experience finding out I had cancer. Instead of getting the call from the doctor or radiologist with my results, I got a call from the oncology office to schedule my app. One of the worst moments of my life.
This hit like an arrow straight to the center. When you have the ability to articulate feelings so accurately and beautifully, it’s a true service to those who have a hard time articulating all of the roiling, tangled emotions. Thank you.
Thank you so much Sadia. I was uncharacteristically nervous to post this today because I didn’t know if it made any sense to anyone else. Your comments means everything to me.
Hello friend… I love seeing your writing… Though of course I wish you didn’t have to write about this topic that you and I know all too well… And I think we’ve touched up on this, but it is so natural to all of a sudden feel an uptick and angst after treatment is done, because the “doer mode“ is over and now you just have to get to the living part of life and that seems less controllable than showing up for chemo and scans and tests etc. (as grueling as that is)… That said, like most things, it gets easier with time, I promise . And reading your experience, and the other people here still makes me so angry at how much the healthcare system is broken… As a physician, I can tell you that I know approximately zero doctors, who think that the patient portal giving patients access to every single one of their test results immediately because of the CARES Act is possibly one of the most egregious things that has happened. Of course you have the right to have your own medical records but to have them immediately after they have been resulted before your doctors or their offices have even had time to see them let alone call you is beyond ridiculous and serves no one… I’m so sorry to all of the patients who this has happened to. Love you and love that you’re on this platform! XO Shieva
I had a very similar experience finding out I had cancer. Instead of getting the call from the doctor or radiologist with my results, I got a call from the oncology office to schedule my app. One of the worst moments of my life.
It is so unacceptable and yet it seems to happen all the time. A true reflection of how overwhelmed and undersupported our medical system is.
This hit like an arrow straight to the center. When you have the ability to articulate feelings so accurately and beautifully, it’s a true service to those who have a hard time articulating all of the roiling, tangled emotions. Thank you.
Thank you so much Sadia. I was uncharacteristically nervous to post this today because I didn’t know if it made any sense to anyone else. Your comments means everything to me.
It makes perfect sense. Spot on. Thank you for sharing 🫶
Thank you so much Katie <3